Abstract
The goal of the present descriptive-correlational study is to examine the relationship between the quality of life (QOL) and meaning in life (MIL) of Children with Special Needs (CSN) parent-carers utilizing the simple random sampling method. It included 186 respondents from a suburban private Christian school in Muntinlupa, Metro Manila. The Meaning in Life (MIL) questionnaire and Quality of Life Enjoyment and Satisfaction Short Form (Q-LES-Q-SF) questionnaire were used. The MIL dimensions revealed that, on average, the CSN parent-carers’ Presence of MIL is partly high while the Search for MIL is neither high nor low, which reveals that they have a valued meaning and purpose, yet they are still openly exploring them. The QOL of CSN parent-carers is overall good, with family relationships receiving the highest score and work with the lowest, revealing that there is a marked satisfaction in family relationships while discontent and unfulfillment with work. There is a significant relationship in terms of age, sex, and living status profile variables with MIL, except for education and monthly family income. A strong significant relationship is demonstrated between MIL and QOL of CSN parent-carers. Overall, MIL’s partly high for Presence, neither high nor low for Search, and QOL’s good result imply that CSN parent-carers have a relatively positive understanding of both MIL and QOL in their life and their determination to keep on pursuing this meaning, purpose, enjoyment, and satisfaction in life. The significant relationship and prevailing themes form the basis for LEAD (Leading, Equipping, and Developing), a parent leadership program where one identified recommendation is the review, enhancement, and endorsement for implementation to ascertain understanding, appreciation, and development of QOL and MIL in CSN parent-carers’ life.References
Burke, M. M., & Hodapp, R. M. (2016). The nature, correlates, and conditions of parental advocacy in special education. Exceptionality, 24(3), 137-150
De Castro, A. (2011). An integration of the existential understanding of anxiety in the writings of Rollo May, Irvin Yalom, and Kirk Schneider. Proquest Information & Learning, (AAI3423854)
Friedman, H.S. & Schustack, M. W. (2012) Personality:classic theories and modern research. Boston: Pearson Allyn & Bacon, (ISBN 9780205050178)
Funke, A. (2019). Improving the quality of life of parents of children with developmental disabilities. Dev Med Child Neurol, 61:1242. doi: 10.1111/dmcn.14254
Keen, D., Couzens, D., Muspratt, S., & Rodger, S. (2010). The effects of a parent- focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders, 4(2), 229- 241
Kirk, R.E. (2011). Simple Random Sample. In: Lovric, M. (eds) International Encyclopedia of Statistical Science. Springer, Berlin, Heidelberg. https://doi. org/10.1007/978-3-642-04898-2_518
Man’s Search for Meaning (2006). An Introduction to Logotherapy. Beacon Press, Boston, MA ISBN 9780807014271
Lindo, E.J., Kliemann, K.R., Combes, B.H., & Frank, J. (2016). Managing stress levels of parents of children with developmental disabilities: a meta-analytic review of interventions. Fam. Relat, 65 (1) 207–224
Malhotra, S., Khan, W., Bhatia, M.S. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatry J, 15:171–6
Mirsamadi, F., & Abdi, R. (2017). Comparison of quality of life and mental health of mothers of children with disabilities and mothers of normal children. Middle E. J. Disabil. Stud.,7, 74
Mohan, R., & Kulkarni, M. (2018), Resilience in parents of children with intellectual disabilities. Psychol. Develop. Soc., 30, (1) 19–43
Mugno, D., Ruta, L, D’Arrigo, V.G., & Mazzone, L. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health Qual Life Outcomes, 5:22
Perkins, E. A., & Haley, W. E. (2010). Compound caregiving: When life- long caregivers undertake additional caregiving roles. Rehabilitation Psychology, 55, 409–417
Seligman, M. (2011). Flourish: A Visionary New Understanding of Happiness and Well- being. New York: Free Press. ISBN 978-1-4391-9075-3
Shek, D. T. L. (2021). COVID-19 and quality of life: twelve reflections. Appl Res Qual Life. 16:1–11
Steger, M. F., & Dik, B. J. (2009). If one is looking for meaning in life, does it help to find meaning in work? Applied Psychology: Health and Well-being, 1(3), 303-320. doi:10.1111/j.1758-0854.2009.01018.x
Steger, M. F., & Dik, B. J. (2008). Making meaning in life. Taylor & Francis, Ltd. Vol.
No. 4 (October-December 2012), pp. 381-385
Stevanovic, D., Quality of Life Enjoyment and Satisfaction Questionnaire – short form for quality of life assessments in clinical practice: a psychometric study Department of Psychiatry, General Hospital Sombor, Sombor, Serbia, Journal of Psychiatric and Mental Health Nursing, 2011, 18, 744–750, accepted 26 March 2011, doi: 10.1111/j.1365-2850.2011.01735.x
Sutin, A., Luchetti, M., Stephan, S., & Terracciano, A. (2020). Meaning in life and risk of cognitive impairment: A 9-Year prospective study in 14 countries. Archives of Gerontology and Geriatrics,Volume 88
Turnage, D. (2019). Stress, coping, and quality of life among parental caregivers of children with autism spectrum disorder
Weitlauf, A. S., Vehorn, A. C., Taylor, J. L., and Warren, Z. E. (2014). Relationship satisfaction, parenting stress, and depression in mothers of children with autism. Autism 18, 194–198. doi: 10.1177/1362361312458039
Wright, A. C., & Taylor, S. (2014). Advocacy by parents of young children with special needs: Activities, processes, and perceived effectiveness. Journal of Social Service Research, 40.
Yalom, I. D. (2002). The gift of therapy: An open letter to a new generation of therapists and their patients. HarperCollins Publishers
Yu, E. A., & Chang, E. C. (2021). Relational meaning in life as a predictor of interpersonal well-being: a prospective analysis. Personality and Individual Differences, 168,2021,110377, ISSN 0191-8869